I was Ethan's dedicated in-home Behavior Technician for New England ABA for three years, forming a deep and meaningful bond with him and his family. Ethan Wall was a remarkable child whose resilience, joy, and unique personality left a lasting impact on everyone who knew him. Tragically, he passed away on March 20, 2022, due to complications from Phelan McDermid Syndrome.
This book is a tribute to Ethan—his individualized strengths, his challenges, and the incredible moments that defined his journey. It provides an in-depth look at the interventions that supported him, the strategies that made a difference, and the lessons learned through both success and struggle. His story deserves to be told, not only to honor his memory but to provide insight and hope to others navigating similar diagnoses.
In addition to sharing Ethan’s personal experiences, this book delves into the research surrounding Phelan McDermid Syndrome, Autism, dual diagnoses, and Applied Behavior Analysis. It serves as both a heartfelt narrative and an educational resource, bridging personal experience with evidence-based practice.
