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Book details
  • Genre:MEDICAL
  • SubGenre:Ethics
  • Language:English
  • Pages:478
  • eBook ISBN:9781667801735
  • Paperback ISBN:9781667801728

To Know and Honor:

Building a Culture of Person-Centered Decision-Making

by Linda Briggs

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What does it mean to provide "person-centered care?" There is no imperative more important than keeping promises to our patients; promises that pledge to provide care and treatment consistent with their goals, values, beliefs and decisions. But keeping promises to our patients and their families is no easy task and requires a commitment to building a culture of person-centered decision making that is focused on discovering "what matters most" instead of "what is the matter with you?" Through personal stories, implementation experiences, and consultations with healthcare and community leaders around the world, the co-creator of the Respecting Choices program illustrates the key elements in designing a person-centered decision-making culture that has the power to transform the way healthcare is delivered.


Over the past three decades, a plethora of programs, guidelines, tools, and techniques have emerged to improve person-centered care: "Care that is respectful of and responsive to individual patient preferences, needs, and values, ensuring that patient values guide all clinical decisions" (Institute of Medicine. Crossing the Quality Chasm). Yet, implementation remains largely an aspiration. Individual's goals and values are often unknown, which leads to uncertainty, over and under treatment, avoidable suffering, increased costs of care, and moral distress for healthcare providers. Fulfilling the promise of person-centered care mandates the creation of a culture that seamlessly integrates person-centered decision-making programs to assist individual in making current and future healthcare decisions and designs systems capable of knowing and honoring an individuals' goals and values. Creating this culture is no easy task The co-creator of the nationally recognized Respecting Choices program shares twenty years of implementation experience creating a national curriculum and consulting with over thirty organizations around the U.S. and in five countries to disseminate the principles of two person-centered decision-making programs, Advance Care Planning (ACP) and Shared Decision-Making in Serious Illness. The perspectives and lessons learned are not intended as a panacea to resolve the daunting challenge in creating cultural transformation, but to promote conversation and consensus on the work yet to be done. The Respecting Choices "Promises" framework is used to explore five elements in building a culture of person-centered decision-making: leadership, system redesign, education and competency, community engagement , and continuous quality improvement.

About the author

Linda Briggs, MSN, MA, RN Consultant, Program Development and Research, Respecting Choices, A Division of C-TAC Innovations. With 25 years of nursing experience as a critical care staff nurse, nurse manager, clinical nurse specialist, and educator, Linda Briggs joined Respecting Choices in 1999 to provide leadership in the development and dissemination of this internationally recognized program. She has been privileged to consult with healthcare leaders, organizations, and communities around the world providing education and support in implementing the principles of effective and sustainable person-centered decision-making programs. Her clinical and research interests have focused on the disease-specific planning needs of patients with advanced illness and their families. Briggs has led the development of the Respecting Choices curriculum, co-authored several Respecting Choices manuals and programs, and has published numerous articles regarding advance care planning and end-of-life care. In 2015, Briggs received recognition from the Tribeca Disruptive Innovation Awards for the impact of the Respecting Choices program. In 2019, Briggs transitioned to a consultant role for Respecting Choices. She resides in Madison, Wisconsin

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