Description
When the author's husband Alan started on his downward spiral into dementia, their work with monarch butterfly conservation gave him a perfect distraction and her an antidote for despair. Their emotional connection as a couple continued throughout his unyielding decline, revived by the recurrence of orange-winged visitors. As his caregiver, Allene came up with practical, creative solutions to preserve both his dignity and her own sanity with each new loss. Loving lies, distraction, crafting workarounds, and turning to her dementia support group are some of the ways she maintained a sense of normality. These takeaways are woven throughout the linked memoir essays, which are often tender, sometimes humorous, and occasionally harrowing. Yet above all, this is a love story and the story of a marriage enhanced by a commitment to monarch butterflies. It is also the unfolding drama of a wife's survival, about how she stealthily introduced caregiving help, squeezed out time for herself, and faced a diagnosis of breast cancer and surgery just as Alan lost the ability to recognize her as his wife. Despite all this, and even in the most frustrating and frightening moments of his illness, the author found gifts of gratitude and abundant reasons to celebrate their shared life.